Yay, I'm 155 weeks old today!
Masinja had his final appointment with the neurologist on Tuesday. Since he has been seizure free for over 2 years now we finally get to wean him off of the phenobarbital. It will take a little while as we are gradually decreasing the dosage amount week by week, but if everything goes well he should be phenobarbatol free on his birthday! The neurologist did caution us that he could possibly have a relapse. She said 60% of patients never have seizures recur and that if he falls into the 40% that do, it will most likely happen within the first 6 months. Please pray that he remains seizure free!!
Masinja seemed to enjoy his third Christmas. He had a little bit better understanding of presents this year. He knew that they were for him and that he was supposed to unwrap them. In fact, we had a hard time making him understand that he had to wait until Christmas morning to open them :o) We still had to help him unwrap his presents because he got preoccupied with the paper as he ripped it off, but that's par for the course. All in all he seemed to appreciate his loot.
That's all for now.
Peace,
T.M.M.
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