Yay, I'm 68 weeks old today!
Masinja had a pretty eventful week. It started on Monday with a trip to the pediatrician. He had his 15 month well baby exam. He got his checkup and then he got some of his immunizations. After that he got bloodwork done. He was not too happy about the immunizations but he was a trooper for the bloodwork. He also had an EEG on Monday afternoon. His new neurologist wanted a baseline EEG. T.M. got to stay with him and I had to wait in the waiting room. I let T.M. go with him because I was afraid that he wouldn't cooperate for the technician. Unlike the EEG that he had done in Louisiana, they do not sedate here. We had to deprive him of his nap that morning in preparation. He did really well. He fell asleep fast and only got upset when the technician woke him up and then proceeded to pull the electrodes off of his head. I can only imagine how much it hurt since it involved pulling his hair!
Masinja had his first appointment with his neurosurgeon on Thursday. He will be going back for an MRI sometime in the next week or so.
Sunday we participated in the March of Dimes March for Babies walk. This week marked the one year anniversary of Madelinja's passing so we wanted to do something in her honor. They were passing out balloons and T.M. was given a pink balloon. We considered it quite symbolic. It was as if Madelinja was walking with us. Even though she was not with us in body, she was certainly with us in spirit.
That's all for now.
Peace,
T.M.M.
Sunday, April 27, 2008
Monday, April 21, 2008
Weekly Update -- 14 - 20 April 2008
Yay, I'm 67 weeks old today!
Masinja had his second PT appointment with his new therapist Kate this week. Kate had given us exercises to do with him the last time we went and T.M.M. had been trying to work with him over the last 3 weeks, but cooperation is not in his vocabulary yet. Masinja worked quite well for Kate though. She was able to get him to pull himself up to a standing position several times using different techniques. He had been pulling himself up to a standing position at home but not as frequently as he should. Kate also got him to "cruise" 5 steps to the left and to the right. By the time his session was over, he was pulling himself up on everything he could without any assistance. Masinja has been doing a great job at home ever since. Now he pulls himself up on the couch and the coffee table and tries to walk all the way around the coffee table. He has really gotten the hang of it and seems eager to start walking. I'm not so sure T.M.M. and I are quite ready for that yet though!
Masinja has his 15 month Well Baby Exam on Monday. He will get some of his immunizations, as well as bloodwork done. He also is scheduled for an EEG that afternoon. Well, let you know how it all turns out.
That's all for now.
Peace,
T.M.
Masinja had his second PT appointment with his new therapist Kate this week. Kate had given us exercises to do with him the last time we went and T.M.M. had been trying to work with him over the last 3 weeks, but cooperation is not in his vocabulary yet. Masinja worked quite well for Kate though. She was able to get him to pull himself up to a standing position several times using different techniques. He had been pulling himself up to a standing position at home but not as frequently as he should. Kate also got him to "cruise" 5 steps to the left and to the right. By the time his session was over, he was pulling himself up on everything he could without any assistance. Masinja has been doing a great job at home ever since. Now he pulls himself up on the couch and the coffee table and tries to walk all the way around the coffee table. He has really gotten the hang of it and seems eager to start walking. I'm not so sure T.M.M. and I are quite ready for that yet though!
Masinja has his 15 month Well Baby Exam on Monday. He will get some of his immunizations, as well as bloodwork done. He also is scheduled for an EEG that afternoon. Well, let you know how it all turns out.
That's all for now.
Peace,
T.M.
Sunday, April 13, 2008
Weekly Update -- 7 - 13 April 2008
Yay, I'm 66 weeks old today!
Masinja had a pretty eventful week. It stated off scary when he fell off the bed on Monday and landed on his head. He and T.M.M. were taking a nap and she got up to go to the bathroom. Masinja was still sleeping so she figured it was safe and just blocked him in with the pillows. Masinja decided to wake up and crawl out from in between the pillows and go looking for Mommy. Just as she was coming out of the bathroom he fell head first off the bed. T.M.M. called me and asked me if I could come home early from work and told me what had happened. I told her to call 911. We didn't want to take any chances since he has hydrocephalus. He was a real pill for the EMT guys. They were trying to immobilize him and he didn't want any part of it. He went for a ride in the ambulance. He went to the Trauma Center in Omaha and they checked him over and released him after about an hour. They just advised us to keep an eye on him for the next 24 hours. Masinja had a pretty good bump and bruise on his forehead and the left side of his face was swollen. He had to go to see his peditrician the next day just to make sure everything was still ok. The left side of his face was still pretty swollen and his eye was black and blue.
Masinja also went to see his new Neurologist this week. She did a pretty thorough exam and ordered blood work and another EEG. She wants to keep him on the phenobarb until he has been seizure free for two years. He is scheduled for the EEG in a couple of weeks. We'll let you know how it all turns out.
That's all for now.
Peace,
T.M.
Masinja had a pretty eventful week. It stated off scary when he fell off the bed on Monday and landed on his head. He and T.M.M. were taking a nap and she got up to go to the bathroom. Masinja was still sleeping so she figured it was safe and just blocked him in with the pillows. Masinja decided to wake up and crawl out from in between the pillows and go looking for Mommy. Just as she was coming out of the bathroom he fell head first off the bed. T.M.M. called me and asked me if I could come home early from work and told me what had happened. I told her to call 911. We didn't want to take any chances since he has hydrocephalus. He was a real pill for the EMT guys. They were trying to immobilize him and he didn't want any part of it. He went for a ride in the ambulance. He went to the Trauma Center in Omaha and they checked him over and released him after about an hour. They just advised us to keep an eye on him for the next 24 hours. Masinja had a pretty good bump and bruise on his forehead and the left side of his face was swollen. He had to go to see his peditrician the next day just to make sure everything was still ok. The left side of his face was still pretty swollen and his eye was black and blue.
Masinja also went to see his new Neurologist this week. She did a pretty thorough exam and ordered blood work and another EEG. She wants to keep him on the phenobarb until he has been seizure free for two years. He is scheduled for the EEG in a couple of weeks. We'll let you know how it all turns out.
That's all for now.
Peace,
T.M.
Weekly Update -- 31 March - 6 April
Yay, I'm 65 weeks old today!
Masinja had another cranky week. T.M. had to go out of town for work so Masinja was missing his Daddy again. He talked to Daddy on the phone each night and that seemed to help for a bit.
Masinja discovered that he can clap his hands so he plays Pat-a-Cake a lot. He is even starting to try to say the rhyme while he claps! One of his favorite phrases that he says all the time is "Baker's Man."
Masinja had another cranky week. T.M. had to go out of town for work so Masinja was missing his Daddy again. He talked to Daddy on the phone each night and that seemed to help for a bit.
Masinja discovered that he can clap his hands so he plays Pat-a-Cake a lot. He is even starting to try to say the rhyme while he claps! One of his favorite phrases that he says all the time is "Baker's Man."
I know we have fallen shamelessly behind on posting pics so we have added a slew of them to this post. Enjoy!
That's all for now.
Peace,
T.M.M.
Weekly Update -- 24 - 30 March 2008
Yay, I'm 64 weeks old today!
Masinja is busy crawling all over the place now. He is getting into everything that he possible can, too. T.M.M. and I spend most of our time trying to keep him out of mischief! T.M.M. actually made a trip to Omaha this week to buy a play yard to keep Masinja safe. It is basically a big octagon where he can play and move around as much as he pleases. It also keeps his toys safe from the dogs. He seems to really like his new play yard. He even used it to help pull himself up into a standing position!
Masinja had his first Physical Therapy appointment here in Nebraska this week, too. He is still on track. We just need to work on standing and walking now. He seems to like his physical therapist and was flirting with her like the little charmer that he is.
That's all for now.
Peace,
T.M.
Masinja is busy crawling all over the place now. He is getting into everything that he possible can, too. T.M.M. and I spend most of our time trying to keep him out of mischief! T.M.M. actually made a trip to Omaha this week to buy a play yard to keep Masinja safe. It is basically a big octagon where he can play and move around as much as he pleases. It also keeps his toys safe from the dogs. He seems to really like his new play yard. He even used it to help pull himself up into a standing position!
Masinja had his first Physical Therapy appointment here in Nebraska this week, too. He is still on track. We just need to work on standing and walking now. He seems to like his physical therapist and was flirting with her like the little charmer that he is.
That's all for now.
Peace,
T.M.
Weekly Update -- 17 - 23 March 2008
Yay, I'm 63 weeks old today!
Masinja is still eating well, but he seems to be reacting to something because he has had a diaper rash on and off for the past couple of weeks. T.M.M. has tried all of the diaper rash ointments on the market, but none of them seem to clear it up completely. She took Masinja to the doctor this week because he has been so raw that he cries when his diaper is changed. The doctor prescribed a special mixture so we will see if it gives him some relief.
Masinja is no longer low-crawling. He started crawling on all fours this week!! T.M. was on the phone and I was sitting on the couch. Masinja was playing on the floor. When I glanced over I noticed that he was crawling. I asked T.M. if he had been doing that the night before and he said no. I told him that he hadn't done it all day long, so he must have chosen that moment to go for it. He is still a little shaky, but I'm sure he will get faster and faster with each passing day.
That's all for now.
Peace,
T.M.
Masinja is still eating well, but he seems to be reacting to something because he has had a diaper rash on and off for the past couple of weeks. T.M.M. has tried all of the diaper rash ointments on the market, but none of them seem to clear it up completely. She took Masinja to the doctor this week because he has been so raw that he cries when his diaper is changed. The doctor prescribed a special mixture so we will see if it gives him some relief.
Masinja is no longer low-crawling. He started crawling on all fours this week!! T.M. was on the phone and I was sitting on the couch. Masinja was playing on the floor. When I glanced over I noticed that he was crawling. I asked T.M. if he had been doing that the night before and he said no. I told him that he hadn't done it all day long, so he must have chosen that moment to go for it. He is still a little shaky, but I'm sure he will get faster and faster with each passing day.
That's all for now.
Peace,
T.M.
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