Yay, I'm 84 weeks old today!
Masinja had a follow up appointment with the neurologist this week. He now weighs 25 pounds and he is still measuring 31 inches long. He had to have his phenobarb levels checked to make sure his dose is correct. He did pretty well considering the phlebotomist ended up having to stick him in both arms because the vein in the first arm rolled!! He got to sit in T.M.'s lap instead of having to be pinned down though so that helped a lot.
On another note, we got the results of Masinja's rapid MRI this week. According to his neurosurgeon here, he no longer fits the criteria for hydrocephalus. The ventricles in his brain are still slightly enlarged though. He also has some fluid between his skull and his forehead but that should go away as he gets bigger. He has to go back in 6 months to have another rapid MRI to see if there have been any changes. If everything is still the same, then Masinja will be released from the neurosurgeon. If his ventricles have gotten bigger though then he is eligable for an alternative procedure to drain the excess fluid. That means he won't have to have a shunt!!
Masinja has a feeding evaluation next week because we are having trouble transitioning him to table food and to a sippy cup. We'll let you know how that goes.
That's all for now.
Peace,
T.M.M.
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