Yay, I'm 94 weeks old today!
Well, still no real resolution on the synagis shot. Now I find out that the decision for Masinja not to get the shot lies at a different base. The program manager here submits his info to a "high-cost drug" officer, and that person, who doesn't know him from Adam, makes the call on his getting the shot or not. Again, the magic "criteria" is adhered to, and he's declined. I'm still working on getting an answer from the patient advocate on moving him to an off base doc. The patient advocate told me it wouldn't matter if Masinja went off base, it would still need to be approved by Tricare. Bottomline: Masinja's health is not going to be dictated by a beaurocacry.
So, let's do some basic math: 4.5 month NICU stay = $1M+ VS. series of synagis shots = $6K to $10K... so much for preventive medicine.
I'll let everyone know when I get him assigned to his new doc. It won't be anyone military ever again.
On a happier note, we took Masinja to the Fall Festival at church. He got to wear his Halloween costume, and be a big scary giraffe! He hung out with his new friend at church, who was a dragon.
pic
That's all for now.
Peace,
T.M.
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1 comment:
Hang in there. The medical system is incredibly hard to navigate. The good news is that although it may be a pain in the behind, the people who advocate for their children get there. You two are such good parents that you won't leave a stone unturned or a resource unchecked. :)
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