Tuesday, March 9, 2010

Weekly Update -- 18 - 24 January 2010

Yay, I'm 159 weeks old today!

Masinja had a pretty eventful week. Speech went fairly well again this week. His therapist is very pleased with the progress he has been making and is going to start introducing some new concepts soon. We finally got the results of the Sensory Profile that we filled out back in November too. Apparently after it was scored it got put back in his original file instead of being passed on to the occupational therapists. Masinja scored significantly so the next step is for him to have a formal OT evaluation. We will have to wait a few weeks for that though because they are short staffed right now.

Masinja celebrated his 3rd birthday this week. We were planning on having a skating party for him this past weekend but the rink required a minimum of 10 people to be in attendance. We would have had enough, but one of our so called "friends" decided that she and her husband and son wouldn't be able to make it. They had another birthday party to attend that weekend and she didn't want her son to miss his nap two days in a row. We have decided to just postpone until next month when Masinja's Aunt CC and Uncle Robert come for a visit. We just had a small family celebration here at the house. T.M. and I helped Masinja open his presents and then we all had some ice cream cake. It was more like ice cream cake soup because I took it out to thaw a bit too early but it was still yummy!

Ice Cream Cake pic

Eating Cake pic

Opening Presents pic 1

Opening Presents pic 2

Opening Presents pic 3

Opening Present pic 4

Opening Presents pic 5

I know Masinja might have a different opinion, but I think the best present he got on his birthday was not have to take phenobarbital anymore!! The weaning process went off without a hitch and we are praying that he remains seizure free from here on out.

Masinja had his 26th ECI session this week. His teacher is going to have the OT on his team come out for a joint visit to see if she can give us some strategies. Masinja is still having difficulty feeding himself with a utensils and he still has a fit when his fingers are dirty. His teacher suggested having him play with Play Doh to try to get him used to different textures and such. I guess it's a good thing that we gave him a huge Play Doh set for his birthday then huh? :o)

On a final note, I thought I'd give y'all a laugh as well as demonstrate why T.M. and I are convinced that Masinja does in fact have a photographic memory. Masinja and I were playing with his letter puzzle yesterday. He likes to go through the alphabet and say what each letter goes with, i.e. A goes with apple, B goes with basket, etc. When he got to the letter O he said, "O goes with octopus." He then proceeded to say, "I have an octopus stuck on my head. Hi, my name is Jake and I'm here to tell you about the word separate." This was a direct quote taken from an episode of Sesame Street that he hadn't seen in over 2 weeks. Needless to say, T.M. and I were both impressed!!

That's all for now.

Peace,
T.M.M.

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